by Zahra Wyne Myotonic Muscular Dystrophy (MMD) has been in my family for many years. Many of my aunts had MMD as well as my mother. It is a genetic disease which means that me and my siblings had a 50% chance of having it. I was diagnosed with MMD two years ago. My mother’s symptoms started appearing after the age of 50 while my… Read More »Muscular Dystrophy: Getting diagnosed in Pakistan
Report by Ribca Ralph, Trainee Sub Editor, Impact SEPLAA. The 2nd UNICEF consultative workshop with NGOs & CBOs on “Review of Child Rights Policies, Legislation and laws in Punjab” was held on the 22nd of July, 2013 at Royal Palm Golf & Country Club, Lahore. Ms. Shagufta Bhatti (Child Protection Specialist, UNICEF) touched briefly upon the topic under discussion for the session bringing it up during the introductions at the… Read More »Treatment for Blood Disorders highlighted at a UNICEF Consultative Session
Knowledge can help save a life. Join us to learn more about what is thalassemia and how it can be prevented. ‘Save a life, save a generation’- SEPLAA Health Awareness message. The 1 hour training is free of charge as a sadaqa-e-jaria. But SEPLAA Foundation registered Members also become Thalassemia Awareness Ambassadors for a year after this training.
In December 2012, I wanted to involve my children in doing the work of Life, Blood & Compassion with me. They were very small at that time, just 9, 7 and the third was a few months old. I was a stay at home mother at that time who had to look after my children. At all times, I tried to keep my family on… Read More »Involving Children in Advocacy
Ammara Farooq Malik A few Pakistanis have ventured for the treatment of their loved ones to Italy: a country once known for it’s high number of thalassemia patients. Yet, not many know about this possibility. Bone Marrow Transplant facilities are still in their infant stages in Karachi and Islamabad and virtually non existent in Lahore. Several complicated cases are refused treatment in Pakistan or referred abroad. The… Read More »Bone Marrow Transplants: Possibilities for Pakistanis
THE EXPRESS TRIBUNE > PAKISTAN > PUNJAB SHARETWEET Published: March 17, 2011TWEETEMAIL Many components of blood go to waste if not separated and stored properly. LAHORE: “We appeal to the health secretary and the chief minister to make blood screening for Thalassemia mandatory before marriage and also include it in the Punjab Healthcare Bill,” said Ammara Farooq Malik, the SEPLAA Foundation president. She was talking to the reporters at the… Read More »Thalassemia Awareness Campaign launched
THE EXPRESS TRIBUNE > PAKISTAN > PUNJAB City to get a bone marrow transplant facility By Sher KhanPublished: February 12, 2011TWEETEMAIL Daughter’s ordeal inspires a mother. LAHORE: The city will soon get a bone marrow transplant centre of its own, the very first in the province. Maybe as early as September, if things go according to plans. The Seeds of Education, Policy and Legal Awareness (SEPLAA), a non-governmental organisation (NGO), recently… Read More »City to get a bone marrow transplant facility
The following write up is from the SEPLAA Foundation website from 2011. The SEPLAA Foundation has embarked on the much needed journey to set up the first Bone Marrow Transplant Centre in Punjab. The drive for the centre was initiated by the Founder of the SEPLAA Foundation, Mrs. Ammara Farooq Malik and is now also flanked by Dr. Marco Zecca of Hospital San Matteo (Italy), Dr. Omer Chughtai (Chughtai’s Lahore Lab) and Dr. Tahir Shamsi (NIBD, Karachi).… Read More »SEPLAA’s plan to start first Bone Marrow Transplant Centre in Lahore.
Interview of Dr. Marco Zecca, Director of the Pediatric Hematology and Oncology Unit Fondazione IRCCS Policlinico S. Matteo, Pavia, Italy.
by Ammara Farooq Malik, Founder, SEPLAA Foundation. It was very fortunate for me to be able to meet the man who helped save my daughter’s life in a face to face informal sitting, in Pavia (Italy). Doctors truly do wonders. But what these special doctors do is give a new life to the most destitute of patients: patients with acute leukemia and genetic blood disorders… Read More »Interview of Dr. Marco Zecca, Director of the Pediatric Hematology and Oncology Unit Fondazione IRCCS Policlinico S. Matteo, Pavia, Italy.